Palliative Care @ Home

What was the issue you were addressing or working on?

The aim of the Care @ Home project is to provide emotional and psychosocial support to people over 65 affected by Cancer, Motor Neurone Disease, Multiple Sclerosis and Parkinson’s Disease, allowing clients to remain cared for at home.  The Project also provides support to the carer/family member affected by the illnesses.


What you did?

This project involves each of the three hospices in Lanarkshire – Kilbride Hospice, The Haven and St Andrews Hospice.  Funding from the Change Fund enabled the project to provide:

Nurse Support

The Care @ Home Specialist Nurse offers clients one to one support within their own homes in a supportive and caring manner, identifying and assessing specific needs.  The Care @ Home nurse is the key contact person within the Team who can provide information/advice signposting and support appropriate to each individual client.

Complementary Therapies

The Care @ Home Team has a dedicated team of qualified complementary therapists who provide a range of stress management and relaxation therapies e.g. reiki, aromatherapy, Indian Head Massage, reflexology and massage within the client’s own home.

Volunteer Befriending

The Care @ Home volunteers provide informal support, companionship and a ‘listening ear’ to clients in their own home allowing carers “time for themselves” helping to reduce instances of loneliness and isolation.

Ongoing Support

The Care @ Home team offer continuity of care and will support clients and carers throughout the illness as necessary.  Support from all team members – nurses, therapists and volunteers is also provided to family members and carers during bereavement.


What were the outcomes - benefits or otherwise?

A patient and carer survey was carried out in 2013 and all respondents indicated that the nurse information & support and complementary therapies were of benefit.  People reported that they now felt more confident and able to cope with their condition due to the supports they had received.

Understanding

  • 37% [12] agreed they had a better understanding of their condition or the person they cared for.

Confidence, Coping & Self-Esteem

  • 55% [18] agreed that they felt more confident about managing their condition / the person they carried for
  • 70% [23] agreed that they felt more able to cope with the condition

Anxiety, stress, relaxation & fatigue

  • 73% [24] agreed they had less anxiety
  • 78% [25] agreed they can manage stress better, while 22% neither agreed nor disagreed. –89% for carers
  • 88% [29] agreed they could relax more easily.

Communication & support – particularly high agreement

  • 63% [20] agreed they felt more listened to.
  • 76% [25] agreed they feel more supported.

Overall wellbeing

  • 81% [26] agreed that overall they had an improved sense of wellbeing – Amongst carers 78% of respondents agreed and 86% of patients agreed with this statement.

Caring role

  • 57% [8] agreed they felt more confident in their carer’s role.

Some patient/carer quotes:

“My husband says he is coping with everything but looks forward to your visit and has admitted he feels so much better after you have been. This helps me too knowing he is taken care of.”

“I look forward to my therapy every week because the pain goes away.”

“It’s reduced my stress levels considerably enabling me to be more in control to take care of mum.

“Support has helped greatly, as I try to keep my feelings from affecting my family/ friends.”


Contacts - to find out more

Gerard Quinn Gerard.Quinn@lanarkshire.scot.nhs.uk

Marjorie McGinty, Programme Manager, Marjorie.mcginty@lanarkshire.scot.nhs.uk

Tel 07766504321